https://www.nextgenals.org/events daily 0.75 2026-04-02 https://www.nextgenals.org/events/2nd-annual-charity-golf-jamboree monthly 0.5 2026-04-02 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/8a8f3a5f-6f5f-430b-a30f-eb9f798bbe79/Golf+Sign+Up+QR+Codes.png Events - 2nd Annual Charity Golf Jamboree - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/9465201f-c32e-4f42-996f-63f320f0f8dc/Golf+Outing+Sponsorships.png Events - 2nd Annual Charity Golf Jamboree - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/events/annual-fox-valley-meat-raffle monthly 0.5 2026-01-11 https://www.nextgenals.org/events/charity-chili-cook-off monthly 0.5 2025-10-07 https://www.nextgenals.org/events/als-boonanza-raffle monthly 0.5 2025-10-07 https://www.nextgenals.org/events/als-mayhem-raffle-1 monthly 0.5 2025-05-29 https://www.nextgenals.org/events/northwoods-meat-raffle-1 monthly 0.5 2025-10-07 https://www.nextgenals.org/events/golf-jamboree monthly 0.5 2025-05-20 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/a8228206-a1a0-4163-a137-e6d25c815e88/Screenshot+2025-03-09+205342.png Events - Golf Jamboree - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/events/meat-raffle-1 monthly 0.5 2025-03-17 https://www.nextgenals.org/events/northwoods-meat-raffle monthly 0.5 2024-09-13 https://www.nextgenals.org/events/meat-raffle-2024 monthly 0.5 2024-04-01 https://www.nextgenals.org/events/als-mayhem-raffle monthly 0.5 2024-05-25 https://www.nextgenals.org/events/kiss-als-goodbye monthly 0.5 2024-02-07 https://www.nextgenals.org/events/highland-coos-for-a-cure monthly 0.5 2024-01-11 https://www.nextgenals.org/events/meat-raffle monthly 0.5 2023-03-28 https://www.nextgenals.org/events/als-benefit-concert-silent-auction monthly 0.5 2024-02-07 https://www.nextgenals.org/events/meat-raffle-2021 monthly 0.5 2021-09-15 https://www.nextgenals.org/news daily 0.75 2026-02-23 https://www.nextgenals.org/news/learn-from-neil-shneider-md-phd monthly 0.5 2026-02-23 https://www.nextgenals.org/news/experimental-antisense-trial-is-showing-promise-for-chchd10-als monthly 0.5 2025-02-18 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/6d0be891-aca7-440f-97d1-b9920b32b7a6/Screenshot+2025-02-17+180155.png News - Experimental Antisense Trial is Showing Promise for CHCHD10-ALS - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/news/nextgen-als-is-stepping-out-from-under-the-umbrella monthly 0.5 2024-01-23 https://www.nextgenals.org/news/nextgen-als-weber-family-initiative monthly 0.5 2022-07-13 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/eb7700b6-e29e-43b8-886b-4ccdd010e832/nextgen3-800x548.png News - NextGen ALS: A Weber Family Initiative - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/b45b2c68-ae49-4f1e-b0dc-5065c3e61c19/nextgen2-800x250.png News - NextGen ALS: A Weber Family Initiative - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/ae6363eb-6e7e-4424-91f5-c29cb6701f3c/nextgen4-01-800x679.jpg News - NextGen ALS: A Weber Family Initiative - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/news/nextgen-als-update-2022 monthly 0.5 2022-07-13 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/f32debca-f483-4622-8359-413df343fe39/Events+Image.jpeg News - We’ve had a busy year, and we want to share it with YOU! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/45c5df6b-d2b8-48a6-8c9e-ebf807da8ce5/Science+Page+Banner+Image.jpeg News - We’ve had a busy year, and we want to share it with YOU! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/news/nextgen-als-mail-campaign monthly 0.5 2022-04-12 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/68370527-e6fb-4422-90ca-ef7f6cd4ece7/Weber+Family+03.JPG News - NextGen ALS just completed their first major mail campaign. But don’t worry, if your mailbox was empty, you can get up to speed here! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/45c5df6b-d2b8-48a6-8c9e-ebf807da8ce5/Science+Page+Banner+Image.jpeg News - NextGen ALS just completed their first major mail campaign. But don’t worry, if your mailbox was empty, you can get up to speed here! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/news/joining-forces-with-project-als monthly 0.5 2021-06-23 https://www.nextgenals.org/news/category/ALS+Treatment monthly 0.5 https://www.nextgenals.org/news/category/ALS monthly 0.5 https://www.nextgenals.org/news/category/ALS+Research monthly 0.5 https://www.nextgenals.org/news/tag/%23nextgenals monthly 0.5 https://www.nextgenals.org/our-team daily 0.75 2024-01-10 https://www.nextgenals.org/who-we-are daily 0.75 2024-01-10 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1618612781967-Q17V4F7SQUHIL3SMK1SQ/Gran+and+Gramps.jpg About - Art Weber In Loving Memory 1926 - 1999 Diagnosed in 1996 Click Art’s image to read his Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/16f2575d-e986-4cdf-a2b3-cae4d34a243f/Dick+Brychell.jpg About - Richard Brychell In Loving Memory 1950 - 2020 Diagnosed in 2017 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1618073094406-GG64GMFHNWPOY7RP1AZ2/image000004.jpg About - Peggy Driessen In Loving Memory 1958 - 2018 Diagnosed in 2002 Click Peggy’s photo to read her Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1ba3b922-1709-4d3c-beaa-5ebcd2871457/Momanddad.jpg About - LuAnn Vandenberg In Loving Memory 1954 - 2020 Diagnosed in 2014 Click LuAnn’s photo to read her Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1618073243341-QHXXE7LWG85PKTJQMLTM/image000003.jpg About - Cindy Esqueda Cindy Esqueda Click Cindy’s image to read her Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1631575362291-FUHKP1TOSL1IX7T9T51D/IMG_0785.jpg About Jim Weber Diagnosed in 2012 Click Jim’s image to read his Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/4be73867-5845-4a2e-aa04-ccb553d00e6f/Jean-Bill+Micke.jpg About - Make it stand out Jean Micke Diagnosed 2022 Click Jean’s image to read her Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1618102836083-4FKV77IUA42BRAYJC5M9/Tim+and+Cathy+2.jpg About Cathy Kettner Diagnosed in 2019 Click Cathy’s image to read her Story https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1620736768529-RW2TS4PR6MZRCK5IE0ZD/IMG_1237.jpg About Richard Weber Diagnosed in 2019 Click Richard’s image to read his Story https://www.nextgenals.org/our-approach daily 0.75 2024-02-07 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1619042953293-YHBA7FLTQ08NFJIWG67Q/Manfredi.jpg Our Approach - Giovanni Manfredi , M.D., Ph.D. Giovanni Manfredi , M.D., Ph.D. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1619042977063-M8127KATM9WK1IMHW677/Hibiki.jpg Our Approach - Hibiki Kawamata Fujita , Ph.D. Hibiki Kawamata Fujita , Ph.D. https://www.nextgenals.org/get-involved daily 0.75 2024-12-04 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1617837082355-OWCGI5407IWGD0CDPJMN/donate-icon121h.png Get Involved https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1617837107676-94YSP0SPUSGOSHKT7Q7A/sponsor-icon121h.png Get Involved https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1617847032907-U48CC4UGS671FMC2YC2N/give-icon121h.png Get Involved https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1617847049982-E1Z8LCSKTQIKFFLI8APA/advocate-icon121h.png Get Involved https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1618072034069-KX5EJFBWMH6TBK6PGOYJ/facebook-red-1-60H.png Get Involved https://www.nextgenals.org/cathys-story daily 0.75 2021-04-29 https://www.nextgenals.org/the-science daily 0.75 2024-02-07 https://www.nextgenals.org/cindys-story daily 0.75 2024-01-10 https://www.nextgenals.org/jims-story daily 0.75 2021-04-16 https://www.nextgenals.org/peggys-story daily 0.75 2021-04-29 https://www.nextgenals.org/arts-story daily 0.75 2021-05-18 https://www.nextgenals.org/history-timeline daily 0.75 2024-02-07 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1621979558619-5VUN55SDXRTX6ISW06T6/Scan+3+copy.jpeg History & Timeline - 1996 & 1999 Art Weber was diagnosed with and passed away from Genetic ALS. We suspect that Art first showed symptoms of ALS at age 55, but because so little was known about ALS at the time, his condition was misdiagnosed. As a result of this, Art underwent a number of unnecessary surgeries, but in 1996, at age 69, he was officially diagnosed with ALS. Art never knew that the form of ALS that took his life was hereditary, and that it would affect his family for generations to come. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622244514360-6UQ3T7KOMN4W9VPFF34S/GettyImages-1186615180.jpg History & Timeline - 2000 Weber family discovers that they carry a genetic form of ALS. Before Art’s death his neurologist suggested that he give blood to Northwestern for ongoing research. Dr. Siddique notified the family in 2000 that they are a genetic family. This meant all 9 of Art’s children had a 50/50 chance of carrying the same gene, and inheriting ALS. They were still unaware of what gene deformity was causing their form of Genetic ALS. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/26823564-eee1-4715-bde6-8417b5274102/%231.jpg History & Timeline - 2002 & 2018 Peggy Driessen was diagnosed with and passed away from ALS. In 2002, at age 42, Peggy Driessen was diagnosed with the same genetic strain of ALS that took her dad, Art Weber, just years earlier. In 2018, after an 18 year battle with ALS, she passed away from ALS at the age of 60. Her light continues to shine through in our efforts to this day. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1621979298806-SVK6CBABC6YSF4X8IAQK/IMG_0058.JPG History & Timeline - 2007 & 2008 “Fishing for a Cure” events. The Weber Family hosted the "Fishing for a Cure" events in 2007 and 2008. This was held at the VFW park in Hollandtown, Wisconsin. It took two huge tents to hold the raffle items, food and refreshments for the massive crowd. They raised $245,000 between the two events for ALS research. Everyone who helped was a volunteer and most of the organizers also had full time jobs! https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622239015777-3AMNK477VEIGC8D8PL8Y/CD9A9385.jpg History & Timeline - 2012 and 2021 Cindy Esqueda was diagnosed with and passed away from ALS. In 2012, at age 58, Cindy Esqueda was diagnosed with ALS. She would be the second of Art’s children to be diagnosed. In 2021, after a 9 year battle with ALS, she passed away from ALS at the age of 67. Her light continues to shine through in our efforts to this day. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622239458436-Z8JTHE10XOBZ4IDLN57T/24799580_10156062522011108_3845517554056864173_o.jpg History & Timeline - 2012 Jim Weber was diagnosed with ALS. Later in 2012, at age 51, Jim Weber was diagnosed with ALS. He would be the third of Art’s children to be diagnosed. He is still living with ALS. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/2d7ee424-7c6d-43a3-8f21-57a3b784a6ed/Momanddad.jpg History & Timeline - 2014 and 2020 LuAnn Vandenberg was diagnosed with and passed away from ALS. In 2014, at age 60, LuAnn Vandenberg was diagnosed with ALS. In 2020, after a 6 year battle with ALS, she passed away from ALS at the age of 66. Her light continues to shine through in our efforts to this day. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622244556929-7FYA84YDHLLA7J84S110/GettyImages-645455730.jpg History & Timeline - 2014 Weber family’s gene deformity was discovered. In 2014, the Weber Family’s gene deformity was discovered at Northwestern University by Dr. Teepu Siddique. Although this was great news there was still no known way to slow or stop Genetic ALS, despite this knowledge. This deformity is not restricted to the Weber line of their family. Research of the family tree to identify and include other families living with this genetic deformity is ongoing. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/e5ca2f35-93f1-4ffa-a8b7-14a6d4392939/IMG_5865001.jpg History & Timeline - 2017 and 2020 Richard Brychell was diagnosed with and passed away from ALS. In 2017, at age 67, Richard Brychell was diagnosed with ALS, although it is suspected that he was symptomatic for several years before this. In 2020, after a 3 year battle with ALS, he passed away from ALS at the age of 70. His light continues to shine through in our efforts to this day. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622240936832-XAWXJPN2F9XATXY9X3JI/Cathy+Kettner.jpg History & Timeline - 2019 Cathy Kettner was diagnosed with ALS. In 2019, at the age of 63, Cathy Kettner was diagnosed with ALS. She would be the fourth of Art’s children to be diagnosed. She is still living with ALS. She now acts as Co-Chair of the NextGen ALS organization. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/7511774d-b35d-4c2b-9c7e-13c0aee48499/julia-koblitz-RlOAwXt2fEA-unsplash.jpg History & Timeline - 2019 Learned about gene silencing. In June of 2019, Jim Weber and Cathy Kettner attended the ALS advocacy conference in Washington DC where they heard Sabrina P talk about new scientific research to silence know ALS deformities. This was the beginning of an ongoing discussion about pursuing this new and exciting research. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622241164977-3L4EFDUCI3ZE424O3TAP/Richard+%26+Claudine+01.jpg History & Timeline - 2019 Richard Weber was diagnosed with ALS. Later in 2019, at the age of 57, Richard Weber was diagnosed with ALS. He would be the fifth of Art’s children to be diagnosed. He is still living with ALS. He now acts as Co-Chair of the NextGen ALS organization. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/46aed226-aa2d-4b66-a713-d88c81c44a35/katt-yukawa-K0E6E0a0R3A-unsplash.jpg History & Timeline - 2019 Decided to fund CHCHD10 research. In December of 2019, after working with the ALS Association for 8 years, the decision was made to work specifically on directed research for genetic forms of ALS. This was the beginning of the NextGen ALS initiative to save the next generation of families with Genetic ALS, any of whom could have a 50/50 chance of having that same ALS gene. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/cc3e56de-1439-4583-845b-c16661c9da30/austin-distel-wD1LRb9OeEo-unsplash.jpg History & Timeline - 2020 Research into options for ALS treatments and nonprofit partners. After doing some initial research into starting a 501c3, it was decided that it would be more beneficial to partner with an existing nonprofit ALS organization. There were months of research done into the different ALS non-profits and their methodologies. At the same time, there were continued efforts into researching ALS treatment options, including different methodologies for gene silencing and gene editing. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/ec08f2d4-1ba2-4803-9d45-fd582195a406/sangharsh-lohakare-Iy7QyzOs1bo-unsplash.jpg History & Timeline - 2020 Discovered ASO therapy for gene silencing. In 2020, as part of their research efforts, our team discovered the use of ASO’s (Antisense Oligonucleotides) as a method to silence genes. This method is already being tested and implemented in a number of similar conditions, and shows great promise in silencing a number of genetic ALS deformities. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/4907617b-1c5e-4056-af1d-78cae68b5f87/Project+ALS+Logo.jpg History & Timeline - 2020 Aligned with Project ALS along with Weill Cornell Medicine and Ionis Pharmaceuticals. Late in 2020, the team officially aligned themselves with the nonprofit organization “Project ALS” as initiative within that organization. The mission of Project ALS is to identify and fund the most promising scientific research that will lead to the first effective treatments and a cure for ALS. Through the team at Project ALS, we are also working with researchers at Weill Cornell Medicine and a Ionis Pharmaceuticals. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1622241918907-GVIX5BYM9BT3DN3M8KNV/Logo+over+background.jpg History & Timeline - 2021 NextGen ALS was officially launched. In May of 2021, we officially launched NextGen ALS. At NextGen ALS we believe in focused, directed, results driven research, with the goal of medical application. For this reason, we are entirely committed to raising funds for targeted research toward developing treatments & cures for genetic forms of ALS. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/396adeae-346e-474e-b2c8-0f37c0dd412c/IMG_0713.jpg History & Timeline - 2022 Jean Micke was diagnosed with ALS. In 2022, at the age of 63, Jean Micke was diagnosed with ALS. She would be the sixth of Art’s children to be diagnosed. She is still living with ALS. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/4a19f772-cdf5-49f5-a54d-4c14fe9957f7/image0.png History & Timeline - 2024 NextGen ALS becomes a fully independent registered 501(c)(3) nonprofit organization. When NextGen ALS was first formed in 2020, we established ourselves as an initiative under the umbrella of Project ALS. Now in 2024, we have stepped out from under that umbrella and registered as an independent 501(c)(3) nonprofit organization. https://www.nextgenals.org/richards-story daily 0.75 2021-07-12 https://www.nextgenals.org/jerrys-story daily 0.75 2021-07-13 https://www.nextgenals.org/sharons-story daily 0.75 2021-08-03 https://www.nextgenals.org/donate-now daily 0.75 2024-01-17 https://www.nextgenals.org/luanns-story daily 0.75 2022-12-04 https://www.nextgenals.org/jeans-story daily 0.75 2022-12-04 https://www.nextgenals.org/the-families daily 0.75 2024-02-07 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1657674723639-BWE8U79JBCJU0ME8DFS7/nextgen3-800x548.png The Families - Make it stand out The Weber Family https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/23568586-543d-4eb6-bf07-6c5702822c93/Screen+Shot+2023-11-08+at+7.14.40+PM.png The Families - Make it stand out The Krumenauer Family https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/7ac5e5aa-f8fc-4f89-bfaf-a18baa372923/Screen+Shot+2023-11-08+at+7.23.54+PM.jpg The Families - Make it stand out The Gundlach/Kratochwill Family https://www.nextgenals.org/the-krumenauer-family daily 0.75 2023-12-22 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/13894e27-61a5-43c7-88a9-13913ca937fd/Screen%2BShot%2B2023-11-08%2Bat%2B7.19.14%2BPM.png The Krumenauer Family - Make it stand out Bernice (Boos) Krumenauer https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/78bf32b0-a165-4a00-9d1e-1ac4d27d0275/Screen+Shot+2023-11-08+at+7.20.44+PM.png The Krumenauer Family - Make it stand out Theresa (Blum) Boos (Grandmother) https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1699492506333-SWDXZRJ9A9EPU8847DJ3/Screen+Shot+2023-11-08+at+7.14.40+PM.png The Krumenauer Family - Make it stand out Gary Krumenauer (son to Bernice) https://www.nextgenals.org/the-gundlach-kratochwill-family daily 0.75 2023-12-22 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1699493189416-AD5X6QPIAB7D5LIAC4Q6/Screen+Shot+2023-11-08+at+7.23.54+PM.png The Gundlach/Kratochwill Family - Make it stand out Pictured above, left image: Eileen (Wepking) Gundlach; center image: Eileen’s five children with Kenneth (front row): Marty, Brad, and Doreen; back row: Kevin and Keith; right image: The family of Doreen (Gundlach) Kratochwill https://www.nextgenals.org/the-weber-family daily 0.75 2023-12-29 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/eb7700b6-e29e-43b8-886b-4ccdd010e832/nextgen3-800x548.png The Weber Family - Make it stand out Top left to bottom right. Jim Weber, Jean Micke, Jerry Weber, Richard Weber, Peggy Driessen, Sharon Sprangers, Mike Weber, Cindy Esqueda, Cathy Kettner https://www.nextgenals.org/new-page daily 0.75 2024-02-07 https://www.nextgenals.org/contact-info daily 0.75 2024-02-11 https://www.nextgenals.org/test daily 0.75 2024-03-24 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/869af712-0b77-481d-852b-b636c0170c16/Progress+Bar3-22-2024.png TEST - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nextgenals.org/home daily 1.0 2026-02-23 https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1619050441778-VKKQGKAX42DM9GWGOXYC/Events+Image.jpeg Home - Upcoming Events NextGen ALS will be hosting several events each year to raise funds for research into treatments and a cure for Genetic ALS. Click here for more information about upcoming events and how you can get involved. https://images.squarespace-cdn.com/content/v1/604805575b4d9a49ad1ea5b8/1619047616602-GOJ6N7S04IM7817K8O2K/Time+For+Action+Image.jpeg Home - Get Involved! Ready to take the next step? You can join the fight to end ALS, and we would love to show you how! Click here to learn how you can take a stand against ALS. https://www.nextgenals.org/in-kind-donations daily 0.75 2024-12-04